rare and genetic diseases
why we need to raise awareness
  • Over 7,000 distinct types of rare and genetic diseases exist with more being discovered every day.

  • Rare and genetic diseases affect approximately 30 million Americans or 1 in 10 people.

  • It is estimated that 350 million people worldwide suffer from rare and genetic diseases.

  • Approximately 50% of the people affected by rare disease are children

  • Approximately 30% of children with these debilitating diseases will not live to see their 5th birthday

  • Approximately 80% of rare diseases are genetic.

  • Rare diseases impact more people than AIDS and cancer combined.

  • 95% of rare diseases do not have a single FDA approved drug treatment.


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1244 Route 199

Red Hook, NY



Tel: 845-219-9527

Colton’s XXXtraordinarY Cause: Our Mission Statement

Colton's XXXtraordinarY Cause is a 501(c)(3) non-profit, volunteer-managed organization.  Our mission is to raise awareness about rare disorders, and to raise funds to support research and treatment for children who have been diagnosed with a rare disorder. We host special events to achieve this goal, and rely on the generosity of individuals, foundations, and corporations to bridge the gaps between financial needs and resources for our benefactors. Ultimately, we seek to raise the kind of awareness necessary to promote early diagnosis and intervention in honor of children like Colton.

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