statistics

rare and genetic diseases
why we need to raise awareness
  • Over 7,000 distinct types of rare and genetic diseases exist with more being discovered every day.

  • Rare and genetic diseases affect approximately 30 million Americans or 1 in 10 people.

  • It is estimated that 350 million people worldwide suffer from rare and genetic diseases.

  • Approximately 50% of the people affected by rare disease are children

  • Approximately 30% of children with these debilitating diseases will not live to see their 5th birthday

  • Approximately 80% of rare diseases are genetic.

  • Rare diseases impact more people than AIDS and cancer combined.

  • 95% of rare diseases do not have a single FDA approved drug treatment.