2018 A Rare Affair

Thank you for making our 2nd annual A Rare Affair a success!!

On September 22, 2018, over 400 people gathered, and over 100 local businesses got involved to support children in our community living with rare diseases and syndromes.  The result was an incredible display of love and compassion, increased awareness for rare conditions, and over $65,000 raised!

As promised 50% of this years profits will, and have already gone to The Focus Foundation (thefocusfoundation.org).  The remaining 50% has gone to the Tatton Brown Rahman Syndrome Community in honor of Aevary Kiernan.

"Your kindness and generosity was beyond measurable and surpassed all expectations.  It is through the selflessness of people like you that children like Colton and Aevary will have hope for a brighter future, and for that, we are eternally grateful."

We hope to see you all back in 2019! Stay tuned for dates and the inspiring story of our next beneficiary!



© 2017 Created by Cale Artworks

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1244 Route 199

Red Hook, NY



Tel: 845-219-9527


Colton’s XXXtraordinarY Cause: Our Mission Statement

Colton's XXXtraordinarY Cause is a 501(c)(3) non-profit, volunteer-managed organization.  Our mission is to raise awareness about rare disorders, and to raise funds to support research and treatment for children who have been diagnosed with a rare disorder. We host special events to achieve this goal, and rely on the generosity of individuals, foundations, and corporations to bridge the gaps between financial needs and resources for our benefactors. Ultimately, we seek to raise the kind of awareness necessary to promote early diagnosis and intervention in honor of children like Colton.

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